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MHSGUIDE: Patients Guide for Malignant Hyperthermia

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Item:  Booklet, 24 pages

Item code: MHGUIDE

Last revised: 2011

Printed:  Black and red on white

Size:  in: 8.5 x 5.5

Language:  English

Description:  Patient source book that talks about: what is malignant hyperthermia, questions before anesthesia, testing, frequently asked questions, ID Tags, sample letters to family, medical facilities, and insurance companies.

Table of Contents:

 

What is Malignant Hyperthermia? 2

  • Who is Susceptible?
  • Safe Anesthetics & Triggers
  • Incidence of MH
  • Causes of an MH Episode
  • MH Treatment
  • Identifying MH Patients
  • Surgery and MH Patients
  • MH Outside Operating Room
  • Other Things that Trigger MH (non-anesthesia)
  • Links Between MH and Other Disorders

Questions to Ask Before Anesthesia 6

Gold Standard MH Test 9

  • What is The "Gold Standard” Test for MH?
  • Why have the Muscle Biopsy Test?
  • Who Should be Tested?
  • Factors to be Considered When Having the Muscle Biopsy
  • Accuracy & Results from the MH Test
  • MH Testing Sites

Molecular Genetic Testing for MH 11

  • What is Molecular Genetic Testing?
  • Why Consider Molecular Genetic Testing?
  • How does Molecular Genetic Testing Apply to MH?
  • What is the Alternative to Genetic Testing?
  • Who can Benefit?
  • Who Orders the Genetic Testing?

Frequently Asked Questions 14

Medical ID Program 18

Sample Letter to Family 18

Sample Letter to Hospital 20

Sample Letter to Insurance Company 21

 

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