June is Exercise for MH Month- if you swim, ride bike, run, walk, do-yoga, or climb mountains, etc., MHAUS is asking you to help raise awareness and funds for Malignant Hyperthermia research by collecting participants, donations, or pledges for our Exercise for MH event!
You can choose to take pledges, donate, or simply participate to help raise awareness for MH. You choose how much or how little you want to participate. For example, you can dedicate just one day in June to Exercise for MH or you can do every day of the month to spread the word about MH. You can ask for donations from your community, family, and friends, or just make a donation yourself. The important thing is to get involved! Tell your family, friends, coworkers, customers, etc… what you are doing and get them to register for the Exercise for MH month as well! Together, we can help save lives by raising awareness for MH. All proceeds will go towards MH research.
Contact Projects Coordinator, Tina Roalef at firstname.lastname@example.org or by Clicking Here for additional information or to share your efforts.
Click Here to Register
Don't forget to click the "share" link at the top of this page to let your friends and family know what you are doing for MH.
If you would like to see people like you participating in Exercise for MH, Click here to access our group page
About Malignant Hyperthermia
Malignant Hyperthermia is an inherited genetic disorder found in an estimated 1 out of 2,000 people. MH crisis situations are triggered by commonly used general anesthetics and the paralyzing agent, succinylcholine, and results in a biochemical chain reaction response in the skeletal muscles of susceptible individuals. General signs of MH crisis include increased heart rate, greatly increased body metabolism, muscle rigidity, and/or fever that may exceed 110° F along with muscle breakdown. Without proper and prompt treatment, MH crisis mortality is extremely high, without immediate recognition and treatment with the antidote, dantrolene sodium.
There is mounting evidence that some patients will also develop MH with exercise and/or on exposure to hot environments. Without proper and prompt treatment with dantrolene sodium, mortality is extremely high. The best way to protect yourself, your family, your patients, and facility, is to be prepared before it's too late.
Why Malignant Hyperthermia Research is Needed
There is no way to tell by looking at someone if they are or are not susceptible to Malignant Hyperthermia. Today the gold standard test for MH involves: removing a piece of muscle from a person’s thigh, hours of highly trained technician’s time, and a large amount of expensive equipment. The muscle biopsy procedure is complex, costly, time-consuming, and not widely available, moreover the patient is left with a permanent scar. MH research is needed to produce a less invasive, more available test to accurately diagnose MH.
About Malignant Hyperthermia Association of the United States (MHAUS)
Established in 1981 when families who lost their children to Malignant Hyperthermia or were unable to find information about MH. Malignant Hyperthermia is a genetic disorder found in an estimated 1 out of every 2,000 people. Today MHAUS provides information and resources to medical and lay communities through conferences, educational materials, ID tags, 24-hour MH Hotline, MHAUS website, and with the help of MH Groups. The mission of the MHAUS is to promote optimum care and scientific understanding of MH and related disorders.